I got some exciting news - thanks to Wendy, my special nurse. She told me she'd askd Dr Gahir if I could go abroad at the end of next month - and she said yes! Woo! Am really looking forward to going to Slovenia now :-) Also - even more exciting - she has said that they will take my PEG feeding tube out before I go. This is brilliant as I didn't fancy going away with a case full of syringes (which I have to use each day to flush water through it so it doesn't get blocked.) It looks pretty ugly too - and you can see it through my t-shirts. Wearing a swimming costume or going to the spa in the hotel would have been impossible - or at least highly embarrassing.
Anyway - they have started the process for me to have it removed. I just have to wait for the appointment now :-) I know I'll probably have to go in for the day and it will involve another tube down my throat - but I will be so happy to get rid of it I won't care! I had call from Catherine the dietician - she wanted to make sure that I haven't been losing weight and that I can eat normally before she gave the go ahead for it to be removed. I managed to convince her and told her I am even going out for meals now.
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